Top 20 Alopecia Influencers on Instagram (Jan 2026)

We found 225 alopecia Influencers
These influencers mention 'alopecia' in their Instagram bio. Here are the top 20. To run a custom search, check out Modash's influencer discovery features (free to try).
01/21/2026
profile picture

1. JYD_World

United States

Erron “JYD” Peterson, call me “Jay” Professional Boxer (13-0 12KOs) #TerribleJawn YouTube:JYD_World Yes, I have alopecia

Followers
104.4k
Fake followers
19.14%
Engagement rate
2.46%
Average Reel plays
35.6k
Audience gender
female
67.92%
male
32.08%
Engagement rate benchmark
  • Median
Audience location by country
United States
96.77%
Mexico
1.29%
United Kingdom
0.43%
Jamaica
0.22%
Peru
0.22%
profile picture

2. Richard Anthony Flowers

United States

#hairlossspecialist follow me #atl🍑 #alopecia 📖 #ceo 📄 #wigs #awardwinning 📜👑 #celebrity #ShopOwner TheCharming ExperienceLLC#atlanta

Followers
50.3k
Fake followers
19.72%
Engagement rate
2.54%
Average Reel plays
34.2k
Audience gender
female
94.14%
male
5.86%
Engagement rate benchmark
  • Median
Audience location by country
United States
92.64%
China
1.29%
United Kingdom
0.57%
Jamaica
0.51%
Trinidad and Tobago
0.42%
profile picture

4. 𝐋𝐀𝐔𝐑𝐀 - Alopecia Awareness

United Kingdom

Finding confidence despite losing hair. 👩‍🦲 Big, BALD and embracing it. 🗣️ Ambassador @changingfacesuk 🎤 Speaker @tedx_official

Followers
18.6k
Fake followers
21.64%
Engagement rate
1.17%
Average Reel plays
8k
Audience gender
female
82.04%
male
17.96%
Top performing Reels
  1. 185.7k
  2. 117k
  3. Alopecia Awareness with @ginaatinukeknight and @relightalopecia 🩵 Alopecia is an umbrella term for partial or complete hair loss from the scalp or elsewhere on the body and 2% of people globally are impacted by alopecia areata, a chronic autoimmune condition. There are several types of alopecia like alopecia totalis, the complete loss of hair on the scalp, alopecia universalis, the complete loss of hair on the scalp and body. And very normalized forms of alopecia like androgenetic alopecia popularly known as “male pattern baldness” even though it’s not exclusive to men. Many beauty standards emphasize long, flowing hair, especially for women. But regardless of gender, alopecia can affect self-image. Navigating this can be complicated. Not everyone seeks out treatment like steroids, topical creams, or hair transplants but they are available. And conditions like traction alopecia can be prevented by making sure that your braids or ponytails are not too tight. If someone with alopecia uses tools like eyebrow tattoos, wigs, or head coverings, that’s up to them. But we should also feel empowered not to. More and more people are being vocal about having alopecia which is shifting the narrative and challenging one-dimensional depictions. Alopecia can be difficult. Not because of the condition itself, but because of the assumptions, intrusive questions, stares, and rude comments we face. EXTRA CREDIT 📝 Do you or someone you know have alopecia? Did you know that it’s an umbrella term for hair loss and also specific conditions? How can we better support people with alopecia?
    8.2k
Engagement rate benchmark
  • Median
Audience location by country
United Kingdom
28.97%
United States
28.4%
Canada
4.2%
Brazil
3.47%
Australia
3.27%
profile picture

5. Children’s Alopecia Project

United States

A nonprofit devoted specifically to children & teens living with all forms of Alopecia and change the emphasis from growing hair to growing confidence

profile picture

6. Felicity Mbhele

South Africa

💕A Alopecia babe Beauty and Fashion Hair connoisseur: @touchedbyfel 📩Email for collab: fel.mbhele@gmail.com 📍SA Watch my latest YouTube video ⬇️ 👋😂

Followers
13.7k
Fake followers
22.26%
Engagement rate
8.03%
Average Reel plays
13.1k
Audience gender
male
17.6%
female
82.4%
Engagement rate benchmark
  • Median
Audience location by country
South Africa
85.5%
United States
5.42%
Nigeria
0.92%
Kenya
0.77%
Zimbabwe
0.67%
profile picture

7. 𝐂𝐡𝐥𝐨𝐞’𝐬 𝐇𝐚𝐢𝐫 𝐀𝐟𝐟𝐚𝐢𝐫

Ireland

➢ ᴄʜʟᴏᴇ ᴅɪɴɴᴇᴇɴ - ᴄᴏʀᴋ, ɪʀᴇʟᴀɴᴅ📍 ➢ ʀᴀɪꜱɪɴɢ ᴀᴡᴀʀᴇɴᴇꜱꜱ ᴏɴ ᴀʟᴏᴘᴇᴄɪᴀ ᴀʀᴇᴀᴛᴀ👩🏼‍🦲 ➢ ᴡɪꜰᴇ ᴀɴᴅ ᴍᴏᴍ 👶🏼🩷 ➢ ꜱᴘʀᴇᴀᴅɪɴɢ ᴘᴏꜱɪᴛɪᴠɪᴛʏ ✨ ➢ ꜱᴇʟꜰ ʙᴜɪʟᴅ 🏠

Followers
13.7k
Fake followers
17.64%
Engagement rate
2.56%
Average Reel plays
11k
Audience gender
female
94.1%
male
5.9%
Top performing Reels
  1. 378.3k
  2. 79.8k
  3. 36.7k
Engagement rate benchmark
  • Median
Audience location by country
Ireland
53.44%
United Kingdom
16.87%
United States
11.74%
Australia
2.51%
Canada
2.06%
profile picture

8. nat!!

United States

22 //📍utah // alopecia awareness 💙 💌 savvy@radtalentmanagement.com

Followers
13.7k
Fake followers
13.47%
Engagement rate
3.51%
Average Reel plays
41.4k
Audience gender
male
34.06%
female
65.94%
Engagement rate benchmark
  • Median
Audience location by country
United States
97.25%
Japan
0.29%
Mexico
0.29%
United Kingdom
0.29%
United Arab Emirates
0.14%
profile picture

9. Jessica Newman

United Kingdom

👩🏻‍🦲Normalising alopecia babes on your page 👖Re-discovering my bald style •5ft5 •size10 ☁️A safe space for everyBODY 📧jessicanewmancollab@gmail.com

Followers
13.6k
Fake followers
29.56%
Engagement rate
1.39%
Average Reel plays
3.5k
Audience gender
male
28.13%
female
71.87%
Top performing Reels
  1. 3.2k
  2. 2.4k
  3. 564
Engagement rate benchmark
  • Median
Audience location by country
United Kingdom
43.3%
United States
21.02%
Australia
4.27%
Canada
3.01%
Germany
2.06%
profile picture

10. Kyler Courtney

United States

Basketball influencer certified BALDHEAD 🏀💸Collabs best bald hooper on the internet #alopecia

Followers
12.7k
Fake followers
16.3%
Engagement rate
2%
Average Reel plays
2.4k
Audience gender
male
59.23%
female
40.77%
Engagement rate benchmark
  • Median
Audience location by country
United States
96.84%
Mexico
0.59%
Nigeria
0.39%
Trinidad and Tobago
0.2%
Bulgaria
0.2%

Search & filter 350M+ influencers

Find creators with the perfect audience for your brand using Modash's discovery tools. Try for free, with no credit card required.

profile picture

11. Smini✨

Finland

Länttiletin (Alopecia) Yapping Korneri 🗣️ Inspiraation lähde rokkaamaan sun epävarmuuksia👑 Täällä EI tarvi pienentää itseään🗣️👑

Followers
12.3k
Fake followers
17.13%
Engagement rate
2.57%
Average Reel plays
19.8k
Audience gender
female
63.96%
male
36.04%
Engagement rate benchmark
  • Median
Audience location by country
Finland
43.87%
United States
39.13%
France
1.98%
United Kingdom
1.32%
Sweden
1.05%
profile picture

12. Sheree & Ottilie ♥

United Kingdom

🎀Ottilie’s Mama 🐚life on the south coast UK • motherhood | outfits | adventures | family | wig life • ✉️fitchett-family11@hotmail.com my links🫶🏼↓

Followers
12.2k
Fake followers
19.72%
Engagement rate
1.7%
Average Reel plays
2.4k
Audience gender
male
10.29%
female
89.71%
Top performing Reels
  1. 781
  2. 610
  3. 557
Engagement rate benchmark
  • Median
Audience location by country
United Kingdom
37.32%
United States
26.77%
Australia
4.61%
Canada
4.16%
Germany
2.29%
profile picture

14. DEAN BOYLE

United Kingdom

Alopecia Awareness. Embracing life, with or without hair. 👩‍🦲All things alopecia and mental health 🎗Supporter @alopeciauk @changingfacesuk

Followers
10.4k
Fake followers
30.27%
Engagement rate
1.03%
Average Reel plays
575
Audience gender
male
83.83%
female
16.17%
Top performing Reels
  1. 1.5k
  2. 403
  3. "I'm Dean - known as @patchproblems on Instagram, and today I'm sharing my story with Changing Faces. "When I first noticed my hair falling out, I felt like I was losing a part of my identity. My confidence and self-esteem seemed to vanish along with my hair.   "I've had alopecia areata since I was ten - with small bald spots appearing and disappearing throughout my life.   "Four years ago, I lost every single hair on my body. It was very traumatic. It seemed like nobody around me understood the emotional turmoil I was going through. I constantly found myself battling the misconception that 'it's just hair.'   "I became anxious and depressed, withdrawing from social interactions because I felt like an outsider. I was convinced that people were talking about me behind my back, and this self-imposed isolation only worsened my mental state. "Part of what held me back from seeking help or sharing my struggles was the toxic notion engrained in society: that 'I am a man – I can’t talk about mental health, I can’t be bothered by something as trivial as losing my hair.' These expectations weighed heavily on my shoulders. "Luckily, I discovered a lifeline. A social media group run by @alopeciauk. In this group, I encountered some of the most inspirational individuals I've ever come across. Reading their stories helped me realise that I wasn't alone. "As my confidence grew, I decided to create a social media page about my journey. The response and support I received was incredible. It was this online community that gave me a sense of belonging. I finally felt heard and understood. My mental health began to improve significantly.   “While I’ve come a long way in my journey with alopecia and mental health, it’s not always smooth sailing. There are days where I still struggle, moments where I question myself and times when the battles feel uphill. "It’s ok to not be ok. But it’s crucial to get the proper support you need. Together, we can break down the stigma surrounding men’s mental health and alopecia." Link in bio to continue Dean's story.   #Alopecia #AlopeciaAreata #AlopeciaAwarenessMonth
    356
Engagement rate benchmark
  • Median
Audience location by country
United Kingdom
19.81%
Indonesia
12.99%
Malaysia
5.18%
Tanzania
5.01%
Nigeria
4.64%
profile picture

15. Anne 🍂 | Welcome to the chaos I call my life 😉

👩🏼‍🦲Welcome to the place where I share about my hair loss and more! #baldandproud #alopecia 💌DM me if you’d like to talk 🌎 IB student ⌨️Blog below ↓

Followers
10.2k
Fake followers
16.36%
Engagement rate
1.43%
Average Reel plays
18k
Audience gender
male
9.47%
female
90.53%
Top performing Reels
  1. Let’s normalise hair loss and wigs!👩‍🦲🧑‍🦲 * for those knowing better that it “is normalised”, stay tuned for a new post with more about this x There is no way I will let a wig bother me for the entire day when I can just take it off. Of course, this will not apply for everyone and that is absolutely okay. Never feel pressured into taking your wig off. When I have a bad day, I would not do it either😉 The point is, can we make this normal? As normal as taking off your jacket? As normal as taking off your scarf? 💃🏽 My friends filmed this and were in no way embarrassed of me doing this. They even stared right back people staring at me, to support 🙂 But in all honesty, we should feel free to do what we want. To wear or not wear a wig. To wear a wig and take it off in public. It should not be weird. It should be our own choice. Of course, people will look and stare, people will comment. But let them. Also know that they will do this with everything that is slightly different, not just us with hair loss. If I am even more honest, I cannot confirm 100% that I would not have looked at others if I never had alopecia. Therefore, it does not make me angry when people look at me (staring is a different story). I even heard someone say “avatar”, and I think it was aimed at me. Well, I see that as a compliment 💦🔥💨🌎 Moral of the story; don’t be afraid to show the world your beautiful bald / patchy head! You are gorgeous regardless. Also, never feel the need to do this if you don’t want to! Let’s normalise hair loss and wigs 💜
    9.8m
  2. 208.8k
  3. 77.2k
Engagement rate benchmark
  • Median
Audience location by country
United States
31.83%
The Netherlands
16.25%
United Kingdom
12.98%
Australia
4.86%
Germany
4.36%
profile picture

16. Sina Theil

🇮🇪 Ireland 🏆Award winning artist 🎙Facebook 51K 📺 Singer-Songwriter,TV & Radio Presenter 📕Irish Music Magazine Cover ✨Alopecia is my greatest teacher

profile picture

18. rae @ cos prep

Canada

🇹🇼🇨🇦 | god nerfed me by taking my hair 小雷 | 台灣加拿大COSER和配音 collab + business inquiries: raeloyvo@gmail.com

profile picture

19. Elly Ashley

United Kingdom

Pole Ninja 121 pole lessons available 🤓 Alopecia Embracer 🥚 Life lover 💖

profile picture

20. The Hair Girl | Alopecia

United Kingdom

👋 Welcome everyone, i'm Amy! 🇬🇧 👩🏼‍🦲 I have Alopecia Universalis (no hair at all!) ❤ Talking all things wigs, makeup and alopecia #alopecia #hairloss

Followers
9.2k
Fake followers
22.6%
Engagement rate
3%
Average Reel plays
16.4k
Audience gender
female
85.78%
male
14.22%
Top performing Reels
  1. 13.7k
  2. 6.7k
  3. 4.5k
Engagement rate benchmark
  • Median
Audience location by country
United States
35.52%
United Kingdom
24.84%
Canada
4.51%
Australia
3.54%
Brazil
3.31%
FAQ
Frequently asked questions
How do I find Alopecia influencers?
Who are the top Alopecia influencers?
How can I see more detailed data about these influencers?

End-to-end influencer marketing platform for Shopify

14-day free trial • No credit card required